Life caring for a child with a complex condition is hard. Whilst we recognise the difficulties faced by many families in this position, Derian House focuses on providing care for children with life-limiting and life-threatening conditions. A referral for our services can be made by anyone, including the child or young person’s own family. Our referral panel will decide whether a child meets the criteria of hospice care, taking into consideration Together for Short Lives categories below.
Life-threatening conditions for which curative treatment may be feasible but can fail.
Access to palliative care services may be necessary when treatment fails or during an acute crisis.
Examples: cancer, irreversible organ failures of heart, liver, kidney
Conditions where premature death is inevitable
There may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities.
Examples: cystic fibrosis, duchenne muscular dystrophy.
Progressive conditions without curative treatment
Treatment is exclusively palliative and may commonly extend over many years.
Examples: batten disease, mucopolysaccharidoses
Irreversible but non-progressive conditions causing severe disability, leading to susceptibility to health complications and likelihood of premature death.
Children can have complex health care needs, a high risk of an unpredictable life-threatening event or episode, health complications and an increased likelihood of premature death.
Examples: severe cerebral palsy, complex health needs, high risk of an un predictable life-threatening event or episode.