Derian House Children’s Hospice Research

In September 2020 we commissioned djs Research to help us understand two things: –

  • Are we still delivering the services our families need?
  • What commissioned services should we providing to our 18 Clinical Commissioning Groups?

 

djs Research interviewed 100 of our families and contacted 19 CCG’s. The results were: –

 

Our families thought these services were the most important:

  • Planned overnight respite care – 62%
  • Use of our hydrotherapy pool – 42%
  • Derian on Holiday – 40%
  • Emotional support – 16%

 

As a consequence, we have: –

  • Amended our respite allocation system.
  • Trained and recruited more Advanced Clinical Practitioners
  • Bought two additional new holiday lodges at South Lakeland Leisure Village
  • Built additional counselling and wellbeing space.
  • Developed a 3 year strategic plan based on our families feedback including carrying out a viability study for a regional Wellbeing Study

 

Our CCGs recognised

  • There were gaps in children’s and young people’s palliative care and end of life provision across the CCGs.
  • There was a dependency on services being provided by Derian House which would be unsustainable without their support.
  • They didn’t fully understand how complex children’s and young people’s palliative care and end of life provision is.

 

As a consequence

  • Some of our CCG’s have commissioned additional services from us.
  • Some of our CCG’s have invited us to help them understand and develop their Children and Young People’s palliative care and end of life strategies and services.
  • Some of our CCG’s have recognised more work needs to be done to help their Children and Young People move from a Children’s Hospice into an Adult Hospice environment.

 

Some unexpected outcomes from the needs assessment were: –

  • It has raised our profile allowing us to influence policy makers including NHSE/I who now see DHCH as an Exemplar model of delivery.
  • Sharing our findings with other Hospices is leading to closer partnership working and adopting shared practices.
  • It is driving other Hospices to undertake similar research to understand their future direction.

 

Please take a look at the video (please use Chrome to run the video) and full research information below to see what we found……

If you would like a printed copy of the research, please contact research@derianhouse.co.uk

Needs Assessment

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